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    • The NIH Office of Rare Diseases Research Patient Registry Standard: A Report from the University of New Mexico’s Oculopharyngeal Muscular Dystrophy Patient Registry

    • Shamsi R. Daneshvari ;
    • Sarah Youssof ;
    • Philip J. Kroth

    Manuscript Type: Paper

    The NIH Office of Rare Diseases Research Patient Registry Standard: A Report from the University of New Mexico’s Oculopharyngeal Muscular Dystrophy Patient Registry


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    The NIH Office of Rare Diseases Research Patient Registry Standard: A Report from the University of New Mexico’s Oculopharyngeal Muscular Dystrophy Patient Registry


    You must log in to view this content. All contents are accessible to AMIA members and meeting attendees. If you are interested in purchasing proceedings, please contact us at mail@amia.org